Charlie: His weekly eye appointments continue to go well and that bastard ROP hasn't shown back up. He has OT two times a week and PT three times a week. We love his therapists and they are very impressed and encouraged by how much Charlie is progressing. His PT says he is a very determined and hard working baby. We are still working on getting him to take all of his feeds by mouth. We are still gavaging the majority of his feeds and we recently switched to a more broken down formula to mix with the breast milk in hopes that will help him feed better. Friday we get an ultrasound of his testicles to see if he has hernias and if he does he will have to have them repaired in the next couple of weeks. This week Charlie's hobbies are: listening to music and pretending to conduct an orchestra, cuddling with his stuffed bunny, batting at his toys, reading books and of course swinging in his swing. Things Charlie does not enjoy: being ignored, the hours between 7-9 pm, tummy time and having his blood pressure taken.
Henry: Henry had a pulmonary appointment today that went quite well. He no longer shows signs of pulmonary hypertension and we don't have to go back to see that crew until October. Henry hasn't started PT/OT yet but I'm hoping he starts next week. He's having eating issues as well so we are gavaging most of his feeds as well. Both boys have reflux but Henry has it worse. We are trying Zantac to see if that helps, so far my vote is no. I am happy to say that it appears sweet Henry has overcome his fear of the dark! He's also sleeping much better through the night. He's a pretty a cool cucumber until he loses his pacifier and then you had better buckle up. This week Henry's hobbies are: staring at all of the ceilings everywhere we go all of the time, looking at those around him suspiciously, listening to music-he prefers classical, rolling his eyes at Charlie and enjoying time with his pacifier. Things Henry does not enjoy: being separated from his pacifier, his reflux, loud noises and surprises.
I leave you with some pictures and much love from the Fitzies
(A)
Zantac didn't work for my son (preemie-29wks gestation). He was 5 months old (3 mths adjusted) when our ped suggested that we add rice cereal to his bottles to make them a little thicker. It worked like a charm. I gave him thicker bottles at night (I made the hole in the nipple just a little larger for his cereal bottles) and he slept on an incline until he was able to roll over. It really did stop his reflux. Once he was able to sit up on his own, I was able to start feeding him cereal (upgraded to baby oatmeal) with a spoon. Reflux went away. Talk to your ped about it. I surely worked for my son :-)
ReplyDeleteHi boys!!!!! Yay for updates and for pictures!!! Holy cuteness!!This will satisfy me for the time being THANK YOU GUYS!! Think about you every day.
ReplyDeleteAny kind of thickener or cereal is contraindicated with the boys due to their GI issues. Going to be a bit of a long road I'm afraid.
ReplyDeleteI am not sure about with their GI issues but have you heard of the thickener GelMix? It is used to mix with breastmilk - I realize you probably have researched everything but I think this one is on the newer side so wanted to suggest it just in case.
DeleteI should've known that before suggesting cereal. I'm so sorry:-(
DeleteNothing to be sorry about! We always welcome suggestions about what worked for others. You never know until you ask :)
DeleteOh, Im so glad you have the wonderful Nap Nanny's. Although recalled, that's only due to improper use… I'm still saving Ella's… it comes in handy when sick (not that that's gonna happen). So glad to know they are doing well and it's true, your (their) schedule will be packed for years to come. They are adorable!!
ReplyDeleteI just love hearing more about their personalities! And I don't know-- when you get a moment to reflect on it-- how you can handle all that cuteness!!!
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