Introduction

Our sons Charles George Fitzpatrick and Henry Michael Fitzpatrick were born prematurely on November 16, 2013 at a gestational age of 24 weeks and 1 day. Their "due date" was March 7th, 2014. We started this site on November 28th.

Both Aly and David will be posting to the site. While you will probably be able to tell who is writing by our writing styles, we will sign off on our entries with our initials so you will be sure of the author.

Monday, January 6, 2014

David Goes Back to Work...

So this is the first day that David has gone back to work since the boys were born (we had a few failed attempts but this time he's really back). It's a tough day for both of us but we are muddling through. Here are some quick updates on the boys;

Charlie: He has an infection in his PICC line and the line will have to be removed. This is really upsetting because it's very hard to get a good line in Charlie and he will have to be without a PICC for 48 hours while they clear the infection. This means they will have to use other peripheral lines to give him his nutrition and other medicines. Charlie is going to get stuck a lot over the next day. He just had his Monday head ultrasound and he has an eye exam within the next hour. The eye exam is to check for ROP and babies hate this exam, from what I've been told. Charlie is also going to start back on a very very minimal amount of feeds today. PLEASE let him tolerate these feeds!

Tomorrow Charlie will be getting an echo of his heart to make sure there is no infection in the valves or vessels of the heart.

Henry: I walked in today and met the Dr. in the hallway. He was kind of speechless and then informed me that he just had to reintubate Henry. This would be Henry's 4th unplanned extubation. Ugh! Other than that, Henry is looking pretty good post op. He gets his eye exam today too and it's his last day of antibiotics. I will finally be able to hold both of them again today as long as they aren't too worked up from their eye exams. Henry is still puffy but slowly but surely the fluids are coming out. I'll try to update after tests results come in.

UPDATE: Just as soon as I posted this the Infectious Disease team came in and listened to his heart and requested an echo stat. They are concerned about how bad his murmur sounds and want to check for vegetation around the valves asap.

(A)

2 comments:

  1. Ugh aly my friend. It is not okay when in the time it takes to write a blog post things continue to change dramatically.hugs courage and strength all your way and love and light to the boys. I want to punch today in the throat for you.

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  2. Every day I hope for some good news for you guys... When are the boys going to get a break. Thinking about you all.

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