Charlie did move to CPAP on Thursday and it is so far so good, in terms of his ability to breathe. Charlie, however, hates CPAP. We are hoping that he gets used to it... stat, as they say at the hospital. CPAP works better if he keeps his mouth closed. The pacifier, therefore, is a great tool. Calms him and stops air escaping. Sorry for the dark photo but I thought you might enjoy seeing his turtle help out keeping it in today.
Henry update would look the same as most of the week. Breathing and growing. However, today, as we rather expected, he went back on CPAP now that his nose is ok again.
(D)
Boy do I wish that I was that turtle snugging up to wee man C. Maybe one day I will get to snuggle with him. Sending love to all of you. Thank you always for these updates. xoxo
ReplyDeleteGlad to see the turtle doing his job to help out. Kind of a guardian, no? Thank you for the update. Onward and upward to the #fightingfitzies!!!
ReplyDeleteI keep meaning to give you some links to things I think you would like... http://www.graciesgowns.org/
ReplyDeletehttp://www.whoirun4.com/
https://www.facebook.com/HopesSeed
http://www.kidshopechest.com/
http://www.kidshopechest.com/Default.aspx
I've been a special needs parent for almost 13 years so if there is anything your looking for just ask or find me on Facebook.