Introduction

Our sons Charles George Fitzpatrick and Henry Michael Fitzpatrick were born prematurely on November 16, 2013 at a gestational age of 24 weeks and 1 day. Their "due date" was March 7th, 2014. We started this site on November 28th.

Both Aly and David will be posting to the site. While you will probably be able to tell who is writing by our writing styles, we will sign off on our entries with our initials so you will be sure of the author.

Saturday, December 21, 2013

Charlie Extubates

I'm on the news desk again. Charlie's nurse had a tough night on Friday night. The bradycardia events that were mentioned before reappeared at the start of her shift and the magic medicine / placebo / red herring (depending on how things pan out) was administered and things got a bit better. That was until 5am when things started going awry. Alarms went off because Charlie stopped breathing. Doctors were called and his breathing and heart rate were eventually restored. Charlie, we would learn, had "coded". Aly gets an email whenever certain things are ordered for the boys. After the doctor had put Charlie's new breathing tube in, she ordered an x-ray to check its position and Aly got an email. The bing on her phone woke her and she called the hospital. 20 minutes later we were at Charlie's bedside getting a report. 

He is fine. It is a serious business and we had a very difficult morning but once we got there he was already stable and all the plans for preventing it happening again were in place. As awful as these events are, they happen, and we have to accept that. There was a fair amount of discussion between the head of neonatology (the on call doctor that night) and myself about the above mentioned medicine but it is difficult and confusing so I will come back to it when some of the variables have been removed. At the moment, Charlie actually remains on a fairly standard premature baby list of supports. 

Henry, on the other hand, got to dress up and cuddle his mom for a while.

We are home now and we are worried but we believe Charlie isn't really any worse off than he was yesterday and tomorrow is another day. 

(D)

2 comments:

  1. I don't know how to comment on these posts,, but wanted to send my love and prayers and positive thoughts. Your family is always on my mind. So glad C became stable and it is lovely to see beautiful little H.

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  2. Hey my friend checking in. Saw on twitter you are having a rough day (although I know they ALL are rough days) spirit wise. Just want to say I love you. I know that love isn't always enough to fix things or make things better, and that is so frustrating. Loving you and hf and your wee men with all my heart today and every day.

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