Nice Work, Monday

December 10, 2103

I woke up dreading today. I was worried that all the tests that were scheduled would bring back results that would push our boys further.  Further from healing, further from being without pain, further from growing and further from coming home. Unfortunately, the only thing we can do on days like this is to meet them head on and be ready to attack whatever new problem shows up. 

We got to the hospital early and watched as the ultrasounds were performed on Charlie's head and abdomen. We met with surgery, infectious disease, neurology and the primary team. We listened to rounds and watched as the results of the ultrasounds came in. We watched as Dr. Marvelous and his team kept refreshing the page to see if the results of the ultrasounds had been "officially read" by the radiologist. Rounds ended and the official results weren't in yet. Dr. Marvelous said he would be back as soon as he got the results. We went to grab a really quick lunch and were only back in the room for a minute when Dr. Marvelous appeared and said, "it's good news". The brain ultrasound showed no change from last week. Hot damn! This might just mean that Charlie's brain is now in a healing phase and we could avoid additional damage. I consider this news a win. His abdominal ultrasound didn't show anything concerning and we just have to keep watching it and making sure the drains are working. I consider this a win but I still think surgery are a bunch of narcissistic misfits. I was able to hold Henry for over an hour, which is the absolute best relaxation method I have ever come across. We actually left the hospital a little before 5 and drove home basking in a day that brought us hope and baby cuddles and the ability to breathe just a little deeper. 

(A)