We have got to know these care providers a little better over the time and there have been some conversations where the events that we have written about here have been discussed from their perspective. Aly and I have both been insistent that we "can take it" and would rather hear the truth, even if it is grim, than some sugar coated, overly optimistic pseudo-truth.
Things we have learned from some of our off the record conversations;
- Henry's worst event was his pulmonary hemorrhage
- Charlie's worst event was his bleeding after the drain was put in
- The day Charlie had his drain and bleeding was one of the hardest shifts that his very experienced nurse can remember
- That same nurse thought that Charlie was going to die and the numbers she saw on the labs on his blood were the lowest she has seen, apart from in babies that died
- Our boys are the sickest babies in the NICU in The Pavilion (as I put it to Aly one time, even the people in the NICU feel sorry for us)
(D)
Hi D or as all of A's twitter family knows you, hello HF. Your boys have admirers from all of the country and the world. We all love your wife so much, she far exceeds the most brave and beautiful character in any epic fairytale. I can't imagine how hard it was going back into the office. I know as I write this you are having maybe the hardest day yet. Please know you all are loved and constantly, constantly thought of. xoxo
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