Introduction

Our sons Charles George Fitzpatrick and Henry Michael Fitzpatrick were born prematurely on November 16, 2013 at a gestational age of 24 weeks and 1 day. Their "due date" was March 7th, 2014. We started this site on November 28th.

Both Aly and David will be posting to the site. While you will probably be able to tell who is writing by our writing styles, we will sign off on our entries with our initials so you will be sure of the author.

Wednesday, December 11, 2013

You've Come a Long Way, Baby

We were worried about Charlie last night (Tuesday night). Although Tuesday had been a reasonably quiet day, Charlie had been having "bradycardia" events. They are monitored constantly and they are said to "brady" when their heart rate takes a quick dive. They usually self correct and it is, apparently, not uncommon in premature babies. So, we don't normally worry about them.

However, Charlie was having more episodes than we had seen before and it's a bit hard to stop the demons creeping into your head when, let's remember, what we are talking about is your baby's heartbeat.

It was great to see Dr Marvelous this morning because he has a great way of making us feel better without being dismissive. So, he made some changes to the ventilator settings, talked to his new residents about how far Charlie has come and made us both feel better.

Tonight, reflecting on Charlie, I remembered that I chose not to share the first pictures of him too much at first. I remember not wanting the attention (sympathy?). Then Aly suggested the blog and I used this photo, that was actually taken by Dr Marvelous. For a while, I considered deleting the photo below that was taken after the day of Charlie's bleeding because I didn't want to upset people. He had 2 IVs in his scalp, several blown IVs in his legs and arms and open, seeping wounds all over. Even though he had his PICC line (and a wound in his left arm from a failed PICC line attempt), they don't give blood in a PICC line. To be fair to the nurses, they tidied things up in his bed but I took this photo at a point where they were, quite literally, just focussed on stopping the bleeding.


Tonight, I was looking at the picture below, taken of our darling son in his mother's arms and, although I know we have a long, long way to go and that I shouldn't tempt fate, tonight, I can't help but feel that our Charlie has come a long way in his short life.

(D)

6 comments:

  1. Oh boy, the tears. Your beautiful boy has come SUCH a long way and I know the fightingfitzies still have a fight ahead, but boy the before and after pictures are incredible to see together like this. Constantly thinking about you all and praying for your beautiful boys.

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  2. They wouldn't be where they are today if it weren't for the incredible amount of love & strength you two have provided them. They are so lucky and fortunate to have you two as their sidekicks!

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  3. Look at your sweet love. My heart is so full. He and Henry have come so far in such a short period of time, I can't wait to see how they grow. Sending so much love and many, many prayers your way.

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  4. They are fighters, just their mommy and daddy!! They are just beautiful and getting stronger and stronger every day. Before you know it, they are gonna be running and climbing and you're going to continue to be amazed at where they were when they were born and where they are today.

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  5. I know it's extremely hard to even contemplate what the future holds and what it might look like, but believe me when I say that one day you will look back at that first picture and then at your sweet son and find it hard to believe they are the some individual. The changes and flourishing that will happen are miraculous.

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